Helping people cope with the changing nature of Parkinson’s – alert by the NIHR
As part of this study people with Parkinson’s and their carers were interviewed about the challenges they faced, how they cope and what could help them manage better.
This new alert from the National Institute for Health and Care Research (NIHR) from June 2023 summarises a recent study which described the challenges people with Parkinson’s and their carers face as the condition progresses, and the strategies they use to cope. As part of the study people with Parkinson’s and their carers were interviewed about the challenges they faced, how they cope and what could help them manage better. Three stages of the disease were identified:
- Early (acceptance of the diagnosis)
- Middle (increased use of healthcare services)
- Late (increasing dependence)
The study found that better understanding of the transitions between stages could help plan for increasing support needs. The findings of this study are being used to develop a self-management website for patients which will give practical advice about living with Parkinson’s, and information about diagnosis, treatment and wellbeing.
Read the alert on the NIHR website.